Ehlers-Danlos syndrome (EDS) is a common comorbid condition to Mast Cell Activation Disorders. For those who have been diagnosed with EDS and live in Utah or surrounding areas, please consider taking this survey.
“Make your EDS voices heard!
There is a medical institution in Utah that is considering opening an EDS devoted center or clinic. One of our main volunteers and personal close friend, has been asked to help collect data to convince the funding side of this potential project that there is need, that there are enough of us, and that we would show up for diagnosis and/or treatment, if a center exists.
If you live in the Western US, or would be willing to travel to Utah for treatment, please take a moment to complete the following survey. Our friend collaborated in designing the survey, and has been assured that the data will be seen by those in a position of influence and decision. This information will be used to help inform what kinds of services are needed. Please feel free to share via social media or email.